This is a Really Real Aging Parents post.

Last night we were awake every 10 mins to an hour (although he did sleep for 3-4 hours after his sleep meds kicked in). He finally wanted to eat something at 1am, which scared me because it meant half asleep transferring to wheelchair and cooking for him (we don’t have a good setup for him to eat in bed). We’re getting good at changing soiled clothes and transferring from bed to wheelchair and back. We’re learning to trust each other and work as a team.I spent an hour or more on the phone trying to arrange his home care, we’ve gotten different answers from each person we’ve talked to, but he finally has an assessment with hospice sometime today. At least, that’s what the last person told me.Right now he’s deleting 2 months worth of emails (mostly junk), 1 at a time, and responding to emails by typing with 1 finger on each hand. He’ll be occupied for awhile, with only the occasional help needed when he clicks in the wrong place.This is hard work, but it’s also rewarding in its own way.I’m exhausted and will thankfully be getting some respite care this evening so that I can nap.