Huff and Puff

This is a Really Real Health post.
 
TW: Weight mentioned
 
Before quarantined life, I had started putting on weight. It wasn’t so much about the numbers on the scale as it was that I could feel it in my body. I was less flexible. It was harder to do things.
 
Then I became a shut in to save the world and the weight has been adding up more and more. I have a hard time with my shoes again. Moving around is harder. I feel it in my joints.
 
Early on, I tried walking but our neighborhood is busy during the day. I felt like I was zigzagging all over the place to stay away from people, none of whom tried to stay away from me. It took all of the joy out of the walk when I had to be hyper-vigilant for who was going to walk up on me next.
 
I stopped walking.
 
I kept eating, and eating, and eating.
 
I keep telling myself it’s not about the numbers on the scale, while also refusing to get on a scale because I’m afraid of what I’ll see. I feel it in my clothes, though. I see it in my face.
 
I feel it everywhere.
 
So yesterday I went out around 9pm and started walking. The streets were mostly empty. I talked on the phone to a good friend for the entire 1.5 miles or so. She didn’t mind my huffing and puffing luckily.
 
Tonight I needed to pick up a prescription, so I walked to CVS and asked Sarah Jane to pick me up once I got there. I could have done the round trip a year ago, but today even the 2 miles felt like it was pushing it. It hurt. I still hurt.
 
But, that’s 2 days in a row.
 
The way I did this the first 2 times was by celebrating every small victory. Today’s victory is that even though I’ve spent a lot of the day in bed due to boredom and depression, I got my ass up and walked tonight.
 
Lets see if I can keep this up.
 
If anyone feels like keeping me long distance company on my walks around 9 or 10 at night, let me know and we can plan a night for me to call. Hope you don’t mind listening to me huff and puff though. Otherwise I have plenty of music to listen to.
 
Gold Star for me, 2 days in a row, even though I didn’t want to.

I’m Tired

This is a Really Real Mental Health post.

This time last year I was intensely suicidal. I was tired of fighting the thoughts that so often wanted to kill me. I was tired of being in pain.

I was tired.

This year, comparatively, I’m doing really well. I don’t really get all that suicidal all that often. My pain is somewhat controlled. I’m relatively stable.

But.

I am tired.

I’m tired of being inside. I’m tired of not going to the gym. I’m tired of missing my friends. I’m tired of hearing about people who aren’t even trying. I’m tired of working. I’m tired of avoiding the world.

I’m tired.

I’m tired.

I’m tired.

And this time I know I’m not alone. I know there are lots of us that are tired.

And it’s still not fair.

None of us deserve this right now. None of us were prepared for it. None of us should have to learn to live with it.

But most of us are learning to live with it. We are doing what we’re supposed to do.

Those that aren’t, piss me off. The more we leave our houses the longer this will take, and it’s going to take a long while as it is.

Stay the fuck home.

I’m tired.

I’m tired of living in this world even though I’m not tired of living.

I’m tired.

I’m tired of not being able to write because there’s no life to write about.

I’m tired.

I am tired.

Painsomnia

This is a Really Real Health Post.

Last night hurt.

It really hurt.

I’m not sure what was different, what I ate, what has changed, but my HS is flaring and I’m also dealing with serious skin, muscle, and joint pain.

That means my inflammation is sky high right now.

And last night I hurt.

I couldn’t sleep.

I had to be up early this morning for a day full of appointments and mobility rides.

I couldn’t sleep. I tossed and turned. I got up. I laid back down.

I disturbed Wonder Woman’s sleep without meaning to.

I fell asleep at 430 am, the alarm went off at 6.

I canceled my 8am, $2 mobility ride and instead called a $20 Lyft a few hours later.  I needed that extra sleep or I would have fallen apart today.  This is the kind of stuff that causes a mental health relapse.

I couldn’t afford that $20 ride.

I couldn’t afford to fall apart.

And I still hurt.

And I’m sitting in a Starbucks waiting for my next ride.  Nothing but time to kill.  Nothing to get involved in.  Sitting and scrolling Facebook endlessly because I’m not sure what else to do to occupy my time.  Two more hours to go.

And I hurt.

Pain like this is so so hard for me. I used to hurt like this all of the time, and while I’m glad I don’t anymore, I’m out of practice with the coping skills of the more intense pain.

That’s not to say I’m not in pain normally, I am, but my normal is a 2 or a 3.  It’s chill.  It’s just there, a constant hum in the background of my life. I work around it.

Today is twice that. It’s enough that it makes every step reverberate through my body. I feel every inch of my skin. My muscles are cramped and sore. My bones ache. My joints feel like they can’t support me.

This is a hot shower kinda day. Even though the water hitting my skin would feel like knives, the warmth would help me relax.

This is an all day curled up in bed kinda day. Even though my back would cramp, the comfort of my cloud wrapped around me would help me breathe through this.

This is a sleeping med kind of day. Even though I’d feel groggy and drugged when I woke up, sleeping through this would be welcome relief.

But in reality, today is a busy, appointment kind of day. I won’t be home until late. I’m spending the day sitting in hard chairs that make me ache even more.

And I’m still tired because of last night’s painsomnia, there weren’t enough hours left to take sleeping meds.

Today is an ouchy kind of day.

But this too shall pass.

This year, this decade.

This is a Really Real “Life in Review” Post.

It’s the end of a year.

I figured, just like so many people do, I’d reflect on the past year of my life.  Think about my accomplishments and what I’d like to take with me into next year.

This year I started giving myself permission to take up space.  Physically, verbally, emotionally. I realized that I was allowed the space that I need. Some of the time I was able to hold the mindset that everyone who thinks otherwise can fuck off. I want to get better at that mindset next year and stop trying to shrink myself to suit others.

This year I survived one of my more intense series of suicidal thoughts. I got myself help. I saw that I have a huge community of people who support me, both virtually and locally. I want to be better connected with that community.

I learned that even though I feel like I’m outside of a group, it doesn’t mean I actually am.

I found joy in sending snail mail. Making well over 100 cards in the past 3 months has been so wonderful, and even better was knowing that it put a smile on someone’s face. I want to keep going, and maybe start selling my work.

I think one of the biggest things I learned this year is that it’s okay for things to be stable. It’s not the calm before the storm, it’s just the calm, and life can really be this way without worrying about what comes next. I want to carry comfort with stability going forward.

I learned to live in the moment. That fully accepting what is happening is the first step to finding solutions. Fighting against a problem only takes energy away from solving it. I learned that not being okay, is perfectly okay. That as long as you don’t make a problem worse, you’re doing the right things – you can always build from there.  I learned that it’s okay to ask for what I need, that it doesn’t always mean fighting.

It’s the end of a year.  One of the better years of my life.

It’s the end of a decade.

It’s hard to wrap up the past decade because there’s a giant split down the middle.  The before and the after.

In the before, there was a lot of love, and a lot of trauma, and a lot of resilience, and a lot of struggle.

In the after there’s a lot of growth, a lot of falling (metaphorically and physically), a lot of healing, and a lot of pain.

It’s the end of a decade. The hardest in my life.

I wrote a big long thing trying to list out the good and the bad of the last decade, but honestly, that’s not all that helpful.  The past decade (and the ones before that) got me to where I am now, and now is what matters.

Now is where I want to spend my time.

Part of Self Care

This is a Really Real Mental Health post.

It’s really easy to get wrapped up in crafting.  I get to sit in one place and let my creative mind flow, distracting me from whatever else is bothering me.

Distracting me from depression,

from housework,

from showering.

Distracting me from life outside of the safe space by the computer.

I just saw a post from this time last year, and I was in the same head space.  I am able to peek out for small bits of time and clean the house, or go spend some time with some friends, or do self care in other ways.

And because of that, it is hard to recognize how pervasive the depression has been.  I mean, I’m still functioning, so it can’t be THAT bad.

Except I dread leaving the house.  Not as bad as it was, but it’s certainly there.

I have to bribe myself into the shower, a part of depression that no one wants to speak out loud because it just seems incomprehensible to those without depression. It seems gross.

Even brushing my teeth takes focus and effort and willpower.

But I don’t FEEL that bad. I’m still smiling and laughing and finding things to be happy about.

My writing is almost non-existent.  I just can’t find anything to write about. I can’t find a reason to stop my other forms of creativity and put fingers to keys.

Except this is part of self care too. My writing is a big way that I process. A big way that I pull the blinders off and actually focus on what is happening.

My writing is my place to get really real with, not only everyone else, but also myself.

I’m still not sure how to break this cycle. Leaving the house is hard, going to the gym is harder, socializing feels like a chore.

I went for a walk the other night, and when Mickey was going to meet up with me to walk, we ended up driving to Starbucks instead.

It was just easier than the physical effort of being cold and miserable outside.

I remember a time when I couldn’t walk very far. I remember what it felt like when I started walking further and further distances. I remember what it felt like to have goals and aspirations around fitness.

I have no idea how to get that back.

I have no idea what to set as a goal.

I don’t even know if I care, to be honest.

But I am beating myself up about it. While still making excuses not to go.

I guess I care enough to give myself shit for not doing what I know will help.

This shit is hard, friends. Even when mental illness isn’t trying to kill me,

it’s keeping me from living.

 

I deserve love.

This is a Really Real Mental Health post.

I’m surrounded by love and I deserve to be. That’s a profound statement coming from me, especially the second part.

I. Deserve. Love.

Sometimes I can’t remember that.

Sometimes, especially now that I’m “living my best life” I wonder how I deserve any of this.

“You deserve happiness, we both do.” Wonder Woman and I mention that (or some variation of it) to each other on at least a weekly basis. I need the reminder when things in my head are dark.

I look for the other shoe to drop whenever things are good. Things can’t be this good, not without something going wrong.

And the thing is, when I’m doing well things still go wrong. Deciding not to have surgery threw me for a loop. I sobbed in Wonder Woman’s arms, I sobbed in the shower, I sobbed while writing the post about it.

But I kept moving forward.

And now it doesn’t seem that bad. It was a blip on the radar in an otherwise great life.

I’m surrounded by love, and kindness, and caring,

and I deserve it.

I have an amazing fiancee. We communicate better than I could ever imagine. Our relationship is so gentle and calm. I love her and feel loved in return. I still look for things to fall apart. I still wonder what thing I’m going to do that will drive her away.

I’m surrounded by love, and kindness, and caring,

and I deserve it.

I have a derby spouse . (It’s a derby thing.)  They are one of my closest friends. We check on each other on a regular basis, sometimes daily, sometimes weekly. We encourage each other constantly. They are exceptionally kind to me and I am kind to them. I still wonder what I’m missing. Are they just pretending to be my friend. Am I really worthy of a friendship like this?

I’m surrounded by love, and kindness, and caring,

and I deserve it.

I’m in a new relationship. It has flowed together so smoothly. We are spending lots of time learning about each other and our lives. I care for her and feel cared for. And I still look for the other shoe. I’m waiting for someone to get upset with this polyamorus situation and call and end to it. I’m waiting for her to to decide that I’m not right for her.

I’m surrounded by love, and kindness, and caring,

and I deserve it.

There are other important friendships, people I have known for years, people that supported me through Parker’s death, best friends, close friends, those friendships that can’t be defined.

I am surrounded by love, and kindness, and caring,

and I deserve it.

There’s my family that loves and supports me, sometimes by telling me hard truths that I need to hear, sometimes financially, sometimes by loving me in the best way they know how.

I am surrounded by love.

And I deserve it.

You deserve it too.

It’s Not Fair!

This is a Really Real Mental Health Post.

and a Really Real Health post.

I worked my ass off and got approved for bariatric surgery.

My final appointment is at 10am today and I will schedule surgery.

Except, I’m not going. I sent a note in last night cancelling my appointment and dropping out of the program.

My therapist never wanted to write my recommendation letter, even though she spent 5 months trying to.  She finally had a long detailed talk with me about it late last week. She didn’t think I was really thinking about this, she thought I was only looking at the outcome I wanted and not the actual challenges.

She thought as much as I’ve grown, as far as I’ve come in the last 3 years, this would be a huge setback to my mental health.

I wanted to ignore her, especially since I’d just spent $200 getting the recommendation letter from an online therapist. I called my older sister, the voice of logic in my life. I wanted her to cheer me on like she’s done in the past.

She pointed out everything my therapist did, and more.

I have worried that my therapist is just against the surgery in general, but I know my sister isn’t. She’s been a major support to me since the first day I talked about it 7 or 8 years ago.

I’ve come so far with my mental health. It’s fucking amazing the growth that has happened in the last 3 years. I sit here as an entirely different person.

But

I still can’t keep myself on a healthy eating routine.

I still can’t keep myself from binge eating.

I still can’t keep myself going to the gym.

I still can’t keep myself focused on school work.

I still can’t control my spending.

Basically,

I’m really good at starting stuff, I’m really good at that initial push. And I still have zero follow through.

Right now, falling off on healthy eating sucks.  I gain weight back and I feel like a failure.

After surgery it could put me in the hospital.  Surgery isn’t going to magically give me the follow through and the willpower to succeed.  Surgery isn’t a quick fix, it’s just a tool.

Also,

As much as I fight it, food is still a coping mechanism for me. I react to stress, to depression, to boredom, by turning to food. I fight it, but it happens, often.

What happens when I completely remove that avenue of coping because it’s physically impossible? What happens to my mental health? What do I replace it with?

What happens if I can’t replace it with something healthy?

What happens if I can’t cope without it?

I’m not typing this all out to convince anyone else, I already know I’m not getting the surgery. I’m typing it out because I need to see it in black and white. I need to type it and grieve it.

I’m sad.

I feel defeated.

It isn’t fair that, yet again, my mental illnesses are getting in the way.